Research Projects

Adult children of persons living with dementia were interviewed to better understand dementia care and health system experiences from their point of view.

Using grounded theory, data collection is complete, and analysis is in its final stages, with writing and reporting now beginning.

Led by an advisory group from the community, this project explores how and why Filipino families provide dementia care, examining family care experiences from a cultural perspective. Using reflexive thematic analysis, this project identifies and interprets the themes and meanings behind family caregiving.

Are you a member of the Filipino community and a family member of a person living with dementia? You may be eligible to participate in this project.

Kinscription is a term coined in the 1990s by Stack and Burton, referring to the process by which family members are recruited (or conscripted) into kin roles. This project expands on kinscription to describe which adult children are kinscripted into dementia care roles, and why. The project also examines the consequences of taking on these responsibilities.

Building on Family Perspectives on Dementia Care, this study explores the experiences of family members supporting a parent living with dementia through the transition from hospital to a long-term care facility.

This autoethnographic project by Dr. Campbell-Enns explores multigenerational housing experiences among Mennonites in Canada — examining how identity shapes the meanings, motivations, and limits of living in intergenerational homes.

Are you a Mennonite person who has lived in an intergenerational home in Canada? You may be eligible to participate in an interview about your experience.

Nursing home residents with low needs were interviewed, along with their family members, to explore why they were living in nursing homes. Data analysis showed these residents tended to live alone and their safety felt at risk. Family members used many strategies to support residents to remain in the community, but they experienced breakdowns in the healthcare system when seeking support.

Through a systematic review of existing literature, we examined the experiences of siblings caring for a parent living with dementia — including how they navigate shared caregiving responsibilities and the impact of caregiving on family relationships.

This systematic review describes experiences of family carers living in rural settings. The findings highlight the challenges of dementia care for family caregivers and the opportunities and limitations that come with providing dementia care in rural areas.

Initiated by the CEO and the spiritual care practitioner of a LTC facility in Winnipeg, this study collected the stories of LTC residents during the COVID-19 pandemic. Approximately ¼ of the residents of the facility were interviewed and described looking outside through their windows while feeling confined to their rooms. They explained the “inside” challenges, “outside” challenges, and ways they coped. Spiritual care practitioners had a key role in supporting residents and advocating for their needs.